Tuesday, December 22, 2009
Hello All
I could go on, but the words on this post don't do justice to the thoughts in my head. Just know that we are blessed abundantly this Christmas season and always because Christ was born and died for our salvation. What greater gift?
Also, Mark's appointment went well yesterday. He is all set for surgery on January 12, 2010. It will again be at Baylor Irving. We are expecting a considerably shorter hospital stay this time. Will keep you posted with anything new.
Love to all and Merry Christmas, Missy
PS . Please, please, please keep my friends Melissa and Jeremy and their families in your prayers. She is still in the hospital at MD Anderson having undergone a 14 hour surgery to remove cancer from her body and reconstruction. It looks as if she may get to leave before Christmas, but her recovery will be most challenging. They will need strength and support in huge ways. I know God is holding her so tight and that he is working through so many people to help support the whole family. Thanks for all the prayers.
Tuesday, November 24, 2009
Schedule
Thanks to Felice and Chris for getting everyone together and thanks to Cher for being such a good sport!. Love, Missy
Thursday, November 19, 2009
Good News!!!
Wow, the power of prayer. God is so good to us and we know it has to be because of all of the people on our team. So many people praying for His healing and His guidance each step of the way. It means so much to us to have your support.
We saw the play "Barber shop Dialogues". I really think everyone will enjoy it. I won't talk about it so I don't give anything away, but you should make plans to go. You won't be disappointed. A heads up also. I would call or go online for tickets for those who plan to come on Thanksgiving weekend. I have heard many people will be in so I think that will be a pretty crowded weekend.
Love to all, Missy
Monday, November 16, 2009
Scan tomorrow.
Tuesday, November 10, 2009
Incognito
Calling All Prayer Warriors
Wednesday, October 14, 2009
1 year
Monday, September 21, 2009
Sunday, September 20, 2009
Dr. Cooley visit.
As for the appointment, it was much like any other with one exception. When he came through the door, every staff member in the office stood and did not sit until he had gone! It was quite impressive. He was shocked to see Mark sitting in the room. (No, he didn't recognize him) His first words were, "Well you look like you are in great shape." In a nutshell, that was the basis for recommending that we not do anything. Mark is doing so well and has no symptoms of pain, high blood pressure, valve failure or anything else. He said that when weighing the risk of the surgery, the risk was to great to take considering how well he is doing. He feels that the aorta might have been enlarged for some time as this can occur in people with the congenital defect that Mark had. Apparently whatever causes the aortic valve to be defective also alters the makeup of the aorta making it more prone to aneurysm. He said that we couldn't solely rely on the size of the aneurysm in Mark's case because of the other factor's that make the surgery a greater risk. As far as long term, the key will be to keep Mark's blood pressure low and refrain from strenuous activity. He did give him a little breathing room allowing him to do some things, but not to overdo anything.
We are so happy that he does not have to endure the stress of that surgery. I will say that this decision is another huge leap of faith for me. While I am glad that he is not going to undergo surgery and the risk it entails, the reality is that the risk of the aneurysm is still the same. I know that God is looking for our total trust. I just pray for His help each day to overcome my human fears. I know that He will provide all that we need, each day, all the time.
Where we are now, your guess is as good as ours. We thing that we will wait for a follow up scan prior to doing Mark's final bowel surgery. That should be either the end of October or November. That will be into Royal Theater play time, so it may be after the first of the year that the next surgery occurs. That is a tentative plan, but there are no definites at this point.
I do know that the Brown's will be laying low. We are going to be out of the spotlight for a while. We are going to get back to just work and kids and recovery for a while. It has been a long 11 months and we are a little weary and looking forward to some kind of normalcy. This could mean a little hiatus from the blog for a while. I will update with any news or changes in the plan, but otherwise, it will be very limited. I thank all of you so much for all of your support. You are so dear to us and we certainly have felt your presence each step of the way. We appreciate your continued prayers as we sort through these final stages.
Love to all, Missy
Wednesday, September 16, 2009
Late Wednesday
We are staying the night with Judy and Donny and will leave at 0630 in the morning for Houston. Mark's appointment is at 1100. at St Luke's Medical Center/ Texas Heart Institute. We are really looking forward to hearing input. We have enjoyed looking at all of the old pictures and documents from Mark's previous surgeries in Houston. It is amazing how things have changed with time!
We will report on our visit, but our flight does not leave Houston until 7:30pm.
I will take many prayers for safe flights and great pilots!.
Missy
Friday, September 11, 2009
Call from Houston.
I really feel like God has opened big huge double wide door has opened for us. Second opinions are always great, but even better to be coming from Dr. Cooley. We are in such good hands. We just keep finding blessings in each step we take!
Please everyone throw in an extra prayer today for our friend Melissa, the young mother with cancer. She is having a very difficult time and is back in the hospital with suspected radiation poisioning and a possible staph infection. She is very sick and I just pray God will lay His hands on her and blanket her and her family with many blessings to get them through this trying time.
Hope everyone has a great day. Happy Friday and even better, HAPPY WEEKEND!!!!!
Wednesday, September 9, 2009
Addendum
Patiently Waiting.
Tuesday, September 1, 2009
Monday/Tuesday Dr. visits
That being said, we can preface the appointment today by saying that the best laid plans are meant to be changed ---right? Today's appointment with Dr. Kourlis brought a new agenda. He reviewed all of the records and the procedure with us. The procedure to fix the aneurysm is huge. Consequently, the risk is great. He really wants Mark to be at "the top of his game" before he will do the surgery. He would like him to be further out from chemo and to have the follow up scan that was recommended by the radiologist following the PET. He would also like to figure in the statistics related to recurrence for Mark's type of cancer. In a nutshell, Mark's health must be optimal in order for him to believe he has the best chance of surviving the surgery.
We have questioned ourselves if the surgery is an absolute. If the risk is so great, is this really what is best. He did confirm that it needs to be done, but the conditions need to be the best they can be. He also feels like that includes reversing the ileostomy. Due to the difficulty of fluid regulation with the ileostomy, he feels it would be best if that were reversed prior to the heart surgery.
Sooooooo, it appears that surgery is likely within a couple of weeks, but not heart surgery. Dr. Crim is out of the office today, but tomorrow we will attempt to get back in touch with him to discuss scheduling the reversal operation.
We haven't eaten yet today, so that is where we are headed and will be on the road again. Hope I have answered many questions. I am sure we will be talking soon.
Much love, Missy
Sunday, August 30, 2009
Tomorrow
Sean and Kristi met Sena yesterday in Ethiopia. Please keep them in your prayers as they work through getting to know her and bringing her back to her new home in the states.
We have made a huge breakthrough at the Brown house!! One of the kids actually wants to learn something from a parent. WOOOHOOOO!!!! Austin was behind the wheel (of a car) for the first time yesterday on the streets of Scotland. He did great and even said he might get up and wash the car today!! Landon thinks he should get a turn next. I am sure that surprises no one. And, Abby thinks she gets the mule now. Let's just slooooowwwwww down everybody!
Love to all, Missy
Wednesday, August 26, 2009
Good News!!!!!!!!
So we begin a whole new journey! While our specific intentions may change slightly, ultimately our prayer is for God to carry Mark through each day closer to optimal health. Only He knows the way. We allow Him take the lead and what an awesome job he has done thus far!. (Whew, that control thing can be so hard to give up!!!!!)
Mark has appointments in metroplex on Monday and Tuesday. We are expecting to have a date for heart surgery when we return. Everything is subject to change, however.
Thank you so much for the constant prayers that continue to carry us through all of this. That is quite a heavy load to carry and we love you all for being there for us.
Missy.
Friday, August 21, 2009
It's Friday!!
I think I can gather my thoughts to rewrite that last post that disappeared into space - AAGGHH!!
It was originally titled still waiting because that is pretty much what we are doing. Mark saw the oncologist on Wednesday, and as expected, we had to wait that "magical two weeks to go in and get the script for the scan he will have next week. We had many questions, and he basically had one general answer. He expects everything to get better without the chemo. IT is very difficult for us and I am sure for them as well to have several different systems involved in this process. The oncologist can't really answer the GI questions and the GI guy doesn't have all the heart answers, and so on and so on, so there is a lot of going in between which leads to a little bit of frustration. I know you would never guess that! Aaaaannnnyway. PET scan is next Tuesday in Wichita Falls. There is a lot riding on good results from this test. We really need only positive results so that we can move forward with his heart surgery. The oncologist will write some sort of release from the cancer standpoint that we are supposed to deliver to the heart surgeon on September. We actually see the colorectal surgeon and the heart surgeon on the 31st and 1st. Also on one of the burners is the possibility of getting Mark's port removed prior to the 31st. But, first things first, scan on tuesday and we will have a few more definites.
Just FYI, it seems that Landon has somehow obtained a facebook. The way I hear it, his yahoo information was used to create a facebook??? I wasn't sure I believed him, but I have since heard of others who have reportedly had a facebook when they never knew they did. Anyway, not my intent for my 10 year old. Thanks to Heather for the great idea of limiting his friends. He is allowed to have family and classmates for friends. I am sure many have already heard from him. What is this world coming to????
I am requesting lots of prayers for our new great niece and her wonderful parents Sean and Kristi. They will be traveling to and from Africa over the next couple of weeks. Sena Anne was abandoned in Ethiopia Sean and Kristi will be adopting her out of an orphanage and bringing her home to join their wonderful family. There couldn't be a family better suited for bringing lots of love to a special little girl. I am so proud of them for their commitment to provide a loving home and wonderful opportunity to a beautiful little girl in need of special attention. I know they will all be blessed by the company of each other. Sean and Kristi have also just moved and made a new home in New Mexico. They are needing to sell their home in Arlington as well. They have a lot on their plate and God on their side, but I know they would welcome many prayers of support for them.
Love to all, Missy
Still Waiting
Sunday, August 9, 2009
We're Done
Wednesday, August 5, 2009
WoooooHoooooo!!!!
Thursday, July 23, 2009
Just to clarify.
He is pretty proud of it, so feel free to send him a message in your spare time.
Missy
I'm Baaaaaaack!
Wednesday, July 22, 2009
Long Time, But Getting Closer!!!
Saturday, July 11, 2009
Hotter than Heck!
So far so good with this treatment. We took his pump off on Friday and so far it hasn't been to bad. He did sit out in the heat and that has made his hands a little worse. He does complain of food not tasting good either. Other than a few small things, it hasn't slowed him down.
Right now he got a late craving for some steak. Sooooo, 10:00 pm and we have the grill going. It's even pretty late for the Brown's. Must be the 2 1/2 hour nap we took today!
Hope everyone is having a great weekend. Love to all, Missy.
Monday, July 6, 2009
Great Weekend.
Treatment # 10 starts Wednesday. We are a little anxious about these final treatments and what new things he might have to face. We shouldn't even try to anticipate, because we know that it is out of our hands. One day at a time.
We missed Amber at the lake. Hope you enjoyed a little one on one time with new baby Abigail. Will and Anna we look forward to the next time you guys can make it for the reunion. And Helen, so many thoughts and prayers were lifted up for you this weekend. We know you would have traded places in a heartbeat. We will pray for God's healing as you near your surgery time that brings you one step closer to overcoming this battle.
Much love to all, Missy.
Sunday, June 28, 2009
Thanks God....
Mark is going to get a much anticipated break now. He would routinely have treatment three days from now, but it will be put off until after the 4th of July. WoooHoooo. So, starting on July 8th, treatment 10, 11, and 12 will be every other week with #12 being on August 5th. Woohoo, Woohoo, Woohoo!!! That was a happy dance in case you couldn't see! I know he will be so glad to have this behind him.
Getting ready this week for the Berend Family Reunion at Lake Whitney. More fun and sun and catching up with family. Mark is all about the fun, but will probably avoid the sun as much as possible. It might be lots of dominoes indoors for him. Suits him just fine.
Have a great Sunday. Love to all, Missy
Saturday, June 20, 2009
Happy Fathers Day
http://thp.upickem.net/engine/Details.aspx?PageType=APPROVED&ContestID=7114&SubmissionID=1008091&IncrementNumber=1&SSMode=STOP#SubmissionDisplay
(couldn't get it to make a link. copy this to your search)
He didn't win the contest and the chainsaw given away, but no worries, he probably won't be using one for a while anyway. Mark is a little drained this weekend. Although, if you had seen him and Austin racing on the go karts yesterday you would never guess it. In fact, maybe it is because of the go kart riding that he feels so poorly today. Anyway, better days are ahead. Have a great weekend, Missy.
Tuesday, June 16, 2009
Wow.
Hoping for a terrrrrific Tuesday for everyone. The kids are at basketball camp half a day and I am trying to catch up on several things I am way behind on and Mark will work on getting in everything he won't be able to do for several days.
Hope all are well. We are looking forward to the upcoming family reunions to get to see everyone. Love you all, Missy
Monday, June 15, 2009
Gosh, Time flies!
Thanks so much to Deanna and Donna and Judy for taking such good care of us when we come to see you. I promise, we never want for anything when we are there! God has blessed us with wonderful family. (I would say big sis's, but the boys are pretty awesome too!) Many thanks to Danny for the help with the lawn. And to Mom and Dad and Grandmother and Grandaddy for bringing us all together.
We are just working workin, and the kids are adjusting to being at home and having to entertain themselves. They fight a lot, but are actually completing a few tasks a day for me to help out. I am really proud of them, but am having to watch them grow up rather quickly right in front of me.
Mark is good. He did really well in Austin, even in the heat of the day at the ballgames. He had some dizzy spells this wlate in the week, but I think we are on top of that now and he seems to be much better, Chemo #9 starts this wednesday.
Falling asleep again, better go.
Monday, June 1, 2009
School is out.
Congrats to the Trojans on advancing to regional finals ( I think that is the right round???). I know I witnessed a huge number of true blue fans. Anyone who sits roasting in that kind of heat must either bleed blue or need to have their head examined. Thanks to all those who confirmed the miserable conditions. I think Mark thought I was being a little pansy. A huge thank you to James and Gwen for a little shade. I should have found you 13 innings earlier.
Many applause to our Tanna for being the valedictorian of the Windthorst graduating class. All that hard work eventually pays off! And to my nephew Justin, we look forward to celebrating the end of your high school years next week also. You guys make us really proud and our kids really look up to you. You should be very proud of yourselves as well.
This is chemo week. #8 starts Wednesday. Mark has had a pretty good week leading into it. I know everyone is so proud of how good he looks. It makes it really difficult to even think that there is anything going on with him. Believe it or not, I can on think of a very few times that he actually looked sick through all of this. We are so lucky. Daily we are reminded of how much worse it could be. So bad, in fact, that sometimes we even feel lucky to be where we are!. God is good. We have an appointment scheduled with the cardio thoracic surgeon on August 11th. Of course that is pending the end of chemo treatments. We have it all planned and lined out. We all know what that will do for us. In time we will know if God's plan works out even similiar to how our plan looks on paper!?!
Congrats to Michael Wipperman. Michael is the young man I have requested prayers for. He is undergoing treatment at MD Anderson. I believe has received three treatments and they have seen miraculous change in the cancer in his body. They feel that his cancer is 85-90% gone. Many kudos to all of those people who walk all night so that successes like these are possible.
God is good. Love to all, Missy
Wednesday, May 27, 2009
One week post chemo.
Short and sweet today, But i might have 30 min in the recliner if I go now. Aaahhhhhhh.
Love to all, Missy
Wednesday, May 20, 2009
Hello All
Saturday was crazy. I had talked myself out of softball games because Hawley was just a little far. Soooo, when they changed to Haskell, I got the kids up and dressed and got on the road, only to get to Haskell and find out it was moved to Hamlin. Now, I am already as far as Haskell, so you know I am not going to turn around. So we drove a long way and we froze our rears, but it was worth it. The girls played great ball, very fun to watch. This group of girls has been carrying a heavy weight with the loss of a good friend and teammate. They recently experienced what an impact this kind of mental and emotional stress can have and how it can eventually manifest itself. It was a huge reminder that we are all human. While many of us have strong minds, and others are great athletes and still others have the biggest hearts - none of us can acheive alone. We cannot carry the weight of the world inside of us and think we will not stumble. We have to give it up to God and know that he will carry it for us. This is a great group of girls and we are so proud of all of their accomplishments. No matter how far softball takes them, they are #1. Good luck to both the girls softball and boys baseball teams from Windthorst on their playoff run.
HAPPY BIRTHDAY to my Austin. Where has the time gone? Where did my little 4 and 1/2 pound peanut go? Only a couple of more weeks and I will have a child in high school!. It can't be. We enjoyed a great family day on Sunday to celebrate his birthday.
Mark's chemo last time was pretty uneventful. I was convinced they had changed his dosing, but I was wrong. Just his lucky week I guess. Today started #7 and he is already a little drained. His potassium is low again and he just got over another bout of thrush. Just a constant "fixing" of all the little things. Again just little things in the grand scheme of it all.
I just have to put in an extra little note for a special prayer for my friend. I was crushed recently to find out about a friend who was diagnosed with cancer. Melissa and her husband Jeremy are a young couple in their 20's with 2 young children. She has had surgery and is scheduled for more surgery tomorrow and will follow with chemo and radiation. I know how strong this young family is. Both of Jeremy and Melissa's children were born with congenital heart disease. They have both undergone multiple surgeries with anticipation of more and ongoing monitoring. I have seen them rise up to this challenge with amazing faith and strength. I know that right now, this whole new occurence of events seems unthinkable. I just pray, pray, pray for her and her family during this difficult time.
Much love to all, I must get back to work. Missy
Monday, May 11, 2009
Chemo is 50%complete.
We are blessed.
Mark's mom fixed a wonderful meal, perfect for filling our bellies before a good nap. The trip to Munday warmed our hearts as always. We even got to come back to mom and dad's to spend the rest of mothers day with them. We ate lite, as they had also enjoyed mother's day at Nelda's a little earlier. Sorry Nelda, we heard we missed a wonderful time and good food! We returned home Sunday night. Unfortunately, while the tooth fairy did visit our house this weekend, the housecleaning fairy did not! Oh well, lucky for me, I have learned to "let it go". It will always be there when I return right? If only I didn't require any sleep, I would surely get caught up!
Much love to all, Missy.
Saturday, May 2, 2009
Funny how things work.
Much love and warmest wishes to all, Missy
Thursday, April 30, 2009
No Chemo this week.
Kids are well. Rain is great! Please pray for everyone to be comforted through difficult times.
Love to all, Missy
Sunday, April 26, 2009
Sunday am.
The Brown's.
Friday, April 24, 2009
Relay For LifeTomorrow!
Ciao! (P.S., I think I might have spelled Ciao wrong on one of my posts! ;-)
Thursday, April 23, 2009
OOPS!
Wednesday, April 22, 2009
Tuesday Night (Or Wednesday morning)
Baseball is sort of kicking us in the booty (as if we needed any more of that. 8 ballgames this week, and 4 of them are at 7:45 pm Waaaayyyy past bedtime when we arrive home. It makes for horrible eating, homework and sleeping habits. Thank goodness it is temporary!
Mark has come around a little bit this Monday and Tuesday. You are probably wondering how our "restful" weekend turned out. It was really nice. Mark slept so much. The only drawback was that he didn't feel any better for it. His concludes that, if resting is not going to make him feel better, he might as well just do what he wants.
Okay, falling asleep again. I don't like it when that happens, because now I don't even know if I made any sense at all. Better catch some zzzzzzzzzzzzzz"s. Much love, Missy
Monday, April 20, 2009
Great Day
Sunday, April 19, 2009
First time blogging!
Some things just make you smile!
Good Morning to all. Now if this picture doesn't make you smile, then what will? That is just pretty sweet. I know Mark would give a whole lot for an ice cold coke right now. Mark is taking it easy this weekend and it is a terrible inconvenience for him. Pray for patience. Better days are ahead, it's just so hard to see through the mud and muck. I am hoping lots of sleep and lots of faith makes the sun shine sooner. Speaking of sunshine, Abby sang our special song for me this morning.
You are my sunshine,
My only sunshine,
You make me happy when skies are grey.
You'll never know dear,
How much I love you,
Please don't take my sunshine away.
I am pretty certain she doesn't know I got that off a mustard commercial! Anyway, sweet words we share together. Along with the Barney song. (Okay, I know it was Barney, but the simple words are great anyway.)
I love you,
You love me,
We're a happy family,
With a great big hug,
and a kiss from me to you,
Won't you say you love me too.
Have a happy day. We love you, The Brown's
Thursday, April 16, 2009
The pump is on.
More as it comes to me, Missy.
Wednesday, April 15, 2009
I Love You Mark!
Thanks to all for your thoughts and prayers. We love you all, Missy.
By the way. Mark's dad has had a couple of follow up visits this week and is getting many good reports. He is recovering so well and we are so thankful for that and also for the time he is getting to have at Danny and Sherri's. God is good.
Saturday, April 11, 2009
Saturday Morning
Well, it's that time, I have a request for everyone who asks what it is you can do.
Oops, interrupted by the beeper which brings up another subject. Fires! As you might have read, Archer County and many surrounding counties have been devastated by wildfires over the past several days. There was just another call for a hotspot near a friends house. We were so fortunate with our own home and many others who were spared from the trajedy of the fires. The fire departments worked so hard to preserve as much as possible. Thankfully, a little divine intervention, calming the wind slightly helped, to control the multiple fires. I never have enough appreciation for the fields surrounding the house. Looking out over green fields with the glowing fire just on the other side provided a sense of comfort. I'll do my best never to give anyone a hard time about dust or manure again!
Anyway, back to my request. I think we could be in need of a little "pick me up". I know how proud Mark is of the sea of people he has supporting Him. Chemo has become quite challenging for him, as we expected. The effects of one treatment and the anticipation of the next are becoming quite a nuisance for him. His difficulty keeping his usual routine, and the discomforts of the side effects are just mounting. I know so many of you can relate to what I am saying. I have found my encouragement to be kind of like talking to my kids. It never seems as effective as what others have to say! I am thinking that just a little reminder from so many loving people in our lives could be a huge dose of inspiring medicine. An e-mail or comment just to say hey and update us on you or your family would be great. If you are in Wichita, you might stop in with a smile, or leave a message at the house for his return home. It may sound so simple, but we are all so busy, that taking even a few minutes can be a challenge. I promise, I have seen the difference all of you can make in him and I would sure love to see it again.
The kids are all into ball games now. Of course, all days of the week, all times of the day, so we will be running as usual with lots of time on the road and lots of bad eating habits! They are already talking about the end of the school year. I can't believe it is just around the corner. Even worse, I got our transfer papers in the mail yesterday for the kids. It says I will have a freshman nest year! Lord have mercy on me. I am overly aware of the fact that I have a teenager, but now a highschooler!. Maybe we just think cancer is our biggest challenge!?!
We are so blessed by it all!!!!!!!!
Much love and thanks to all of you. Missy
Sunday, April 5, 2009
Relay is over.
Mark has been trying to catch up from the busy weekend. Getting some much needed rest will hopefully be the key. Thank goodness for a Sunday for him to rest.
Hope all of you are well. More later. Missy
Tuesday, March 31, 2009
Tuesday, March 31, 2009
Well I am really needing to catch up here. So much has happened over several days. The weekend was a challenge for Mark's dad. A combination of medications, sleep deprivation, surgery and lengthy hospital stay were really messing with his mind. Thank goodness that has passed. He is resting well now and they are talking about some outpatient rehab. The bad news is that they still don't know what started all of this in the first place to figure something out and know best how to care for him.
Chemo #4 is tomorrow. Mark loaded up at the Survivor meal in Windthorst tonight. I think Grandpa was a little surprised at his appetite. He was offering Mark his food too. He does try to pre-load to make up for the next several days. He had his CT scan today to monitor his heart. We will have that report pretty quickly.
We enjoyed getting to see Mark's family at the birthday party this weekend. We are so lucky he is able to keep going. God is good.
Hope everyone is planning to come out to the Relay for life this weekend in Archer City. It will be a big time. The meal tonight was a nice treat. Dorothy Scobee spoke and gosh, if you ever are feeling sorry for yourself, you need to visit with her. Now she has been through some difficult times.
hjbsdf8791gldb. Oops, dozing again. Better go.
Love to all, Missy
Saturday, March 28, 2009
Sat. Morning
Granddaddy, Gene, Uncle Gene, dad, left ICU yesterday evening. He was looking good and reported feeling fairly well when they transferred him. He was even up enjoying his yummy liquid diet. Unfortunately, the biopsy did not produce many new answers for him. About the only definite that they have told him is that there is not a cancer or a marrow disorder that is causing his difficulties. While we are so grateful for that, it also means that they don't have the answer for what is causing all this mess. We are still hoping that they can figure out, but more importantly, just make it better so Granddaddy can feel himself again.
Mark woke up feeling good today. Since we cancelled our trip and ballgames were cancelled due to weather - we might get some leisure time! That is after laundry and dishes, and housecleaning and grocery shopping and ............
Oh, I almost forgot. Thanks to Nelda for the good news you delivered this weekend. We certainly appreciate all your hard work for the TEAM. Also, I got the pleasure of taking care of Mrs. Schreiber this week. 91 years old and such a pleasure. Very sharp lady! We had a great time and hopefully got her fixed up so she can get back home.
Love to all, Missy
Thursday, March 26, 2009
Thursday, March 26
Don't have long, just a quick note. Mark is fair this week and working on managing some new side effects, but overall still doing well.
Mark's dad is still in the hospital. This is day 8. They are still uncertain of his diagnosis. They have exhausted so many possibilities. He is recovering as we speak from a lung biopsy. We are praying that he comes off of the ventilator routinely and gets back to his room. They say it will be a couple of days for results. I know I have prayed for patience before. I think Mark's whole family has been incredibly patient. I guess there is little choice to be anything but. Hopefully this will be the key to finding a diagnosis so they can begin the appropriate treatment. Thanks for all the thoughts and prayers.
Love to all, Missy
Saturday, March 21, 2009
Saturday Morning
We are going to have to beef up the the communication to the man upstairs. Mark's dad is still in the hospital and they are still uncertain of what is causing his difficulties. Many, many tests have produced little explanation. He is looking at several more tests at the beginning of next week after he has been off of his coumadin. We are really praying for God to intervene and open the window for them to see more clearly how they can best treat him. He will provide.
I also want to mention something else. Every now and then I get to a point where I think I am going to spontaneously combust. I just cannot imagine being faced with even one more thing. I do begin to wonder . "I know that God will not give me more than I can handle - but just how close do I really have to come" I guess it is just this thing that He and I have. He pushes me, and my slighlty competitive self steps up to the plate. And, just when I am certain the game is over and I am going to be defeated, I realize that I am just being weak. I know that if He can push me, then he knows I can take it so........ not to worry. This is fresh, because yesterday was quite a day for me. One where you just want to crawl in a hole because the world is falling apart around you. But, by the end of the day (after Dana had to endure my crazy venting), I could look back and see that for every place I was in that day, God had chosen me to be there. Not because I am someone with any magical talent, but sometimes just to help me grow in areas where I have been challenged. Now, these are really not any special "words of wisdom" by Missy, just something in my heart that I needed to get out. I really try to spare you guys most of this, and stick to the facts. Today was just the day.
Lastly, I want to mention a very sweet lady I met yesterday. She is being faced with potentially one of the hardest experiences of her life. Her son is awaiting biopsy results to determine if he has cancer. It hit very close to home for me for a couple of reasons. The most obvious, cancer, but also the challenges that Michael has faced in his lifetime are very similar to some we have experienced in our own lives. I recognized this immediately when I met him and I couldn't help being personally touched by the whole thing. I got to meet Michael's mother and a dear friend of hers and hear more of their story. The whole experience from Michael to his mother was so pleasant. Michael and his mother are blessed to have each other and to have support from wonderful friends and the small community they live in. I pray for God to guide them and carry them if necessary through any storm they are facing.
We love you all, Missy
Thursday, March 19, 2009
Thursday evening.
We could use some extra prayers for Mark's dad. He is having many tests run to figure out the cause of some breathing difficulties he has been having for several weeks. There are many question and not many answers so far. We are just praying for God to give the doctors the wisdom to treat him appropriately for his complete recovery. And for Him to give the rest of us patience as we wait for them to put all of the pieces together. Granddaddy is in good spirits, telling everyone how "good" he has been. I tried to get him to scoot over in his bed so I could get some rest too!
Also, Mary could use a few extra prayers. She lost her mother this week after many difficult weeks. May God comfort her during such a trying time, and let her be open to know the He is holding her always, even when she feels it the least.
Many thanks to all of you for your endless committment to continue supporting us on this journey. You are all wonderful. Love, Missy.
Saturday, March 14, 2009
It's the Weekend!
Hope you are all well and enjoying each day to the fullest! Love to all, Missy
Monday, March 9, 2009
New Item
Sunday, March 8, 2009
Good weekend.
Thursday, March 5, 2009
Thursday, March 5, 2009
We are half way into chemo #2. Mark is wearing his pump with chemo infusing until tomorrow. He is pretty drained, but overall not feeling to horribly, so that is a blessing. The last week has been kind of crazy. Thanks for all the prayers and well wishes for my dad. He was sick and spent several days in the hospital this past weekend. We need a complete recovery for him as well as many others we have added along the way. Also, over the past week, I have learned of three men Mark's age who have all been diagnosed with very serious illnesses, one of which I cared for in the hospital. I just want to pray for all of them and their families that God brings them peace as they begin their journey to better health.
And on a brighter note.....The boys (Austin and Landon) have chosen this weekend to sell their home baked sweets to raise money for the Relay for Life. They are baking up a variety of treats and will have them for sale at Posada Pots on Saturday, March 7th.
www.posadapots.vpweb.com
David and Nelda so graciously allowed them to come when they are open on the weekend. The weather is supposed to be great. The high is in the 80's. It will be a perfect day for everyone to come out and see the boys. Abby will probably still has a few hugs for sale as well! I am hoping Mark will feel well enough to go out and soak in some rays also. The web site above will give directions to the location. If you are getting ready for spring and summer outdoors, you really ought to make a trip there to see all of the neat things they have. You can find many of them on their website as well.
Don't forget the Relay for Life coming April 3rd and 4th to Archer City. There is still plenty of time to participate, or just plan to come out and see the festivities.
Love to all, Missy
Saturday, February 28, 2009
Catching Up.
Chemo #2 this week wednesday. Pray for Mark.
Love to all, Missy
Sunday, February 22, 2009
Thanks for the Evening
He sure would of liked to see Craig Morgan sing "International Harvester" At least after talking with him, we knew some of the popular songs. We were pleasantly surprised by the whole concert. I think even more so by the opening act Craig Morgan. He was absolutely wonderful. I can't help but leave a link here because I want you to hear one of the songs that really makes you think. He could have just as easily been playing in a Christian concert. I think he referenced his Maker in about 80-90% of everything he sang. He really sang from his heart and his passion was obvious. Very enjoyable from our floor seats! Trace Adkins presents a totally different style. Very entertaining and enjoyable as well. Only problem there was everyone thought they needed to enjoy him while standing up! Didn't bother us any to sit right in the middle of them! Hope you enjoy the new song as much as we did.
http://www.youtube.com/watch?v=cegjAGZWp58
Once again, we are so lucky to benefit from all the wonderful people we have in our lives. Just like he says, "God must Really Love Me (us)"
Mark is doing well. Just like the energizer bunny. He has ups and downs energy wise, but overall is doing well. 1 down WooooHooooo. He sees Dr. Crim tomorrow for another follow up with him and his nurse specialist. I think we are finally getting a handle on all of the stomach issues. Praise God. We will see tomorrow.
Love you all, Missy
Saturday, February 21, 2009
Saturday
Love to all, Missy
Wednesday, February 18, 2009
Treatment #1
Yesterdays appointment went well. It was a little de ja vue. We were uncertain of where the doctor's office was. It ended up being at the hospital - Baylor Irving. Kind of strange being back there. Dr Weisberg was kind enough to see us on his afternoon off. He visited with us, and answered all questions. He reassured us that the treatment plan we have is the standard treatment for Mark's type of cancer. There are different combinations of drugs, all with similar statistics, and all with slightly different side effects. The Folfox 6 is what he would use if we were to seek treatment in his office. Overall a good visit and Mark really seemed to like him.
Today, Mark had his lab drawn and his first treatment was started, It was pretty uneventful, At present, he is receiving the 5FU via a pump into his port. He carries this pump around in a bag and will go back to the clinic on Friday to have it removed The only side effect so far is the cold sensitivity. We were actually surprised that it was affecting him so quickly. He knew immediately when he tried to take a drink of iced tea, and when he tried to drive the mule out on this cool evening. He will just have to be a little more conscious about what he is doing.
Okay,gotta go. Falling asleep. Not sure if it will all make since. More later, Love to all, Missy,
Sunday, February 15, 2009
Happy Birthday Uncle Doug!
We are having a good weekend in Scotland USA. Today was very nice to just stay at home and actually get a few things done. It makes only a small dent in my list, but something is better than nothing. It is a much needed break from the running we do. Especially before we start this coming week.
Monday brings work, doctors appointments, and more work - As do Tuesday, and Wednesday. In addition to Marks appointments, we have Landon recovering from strep throat, Abby trying to get some allergy control, and Austin on the last leg of his braces. What would we do with nothing to occupy our time?! Mark is really ready for Wednesday to come. The anticipation is for the birds. He is ready to begin getting it behind him and marking one more feat off of the list.
Thought you all might enjoy listening to what has become one of our favorites. Cindy Lou passed this cd on to me one day several months ago. Sometimes words really can be truer than life. I am working on getting Abby to sing this one. Hope you enjoy
http://www.youtube.com/watch?v=ZZayut9i45M
Hope all of you are well. Many hugs and kisses to everyone on this day after Valentine's!
Missy
Wednesday, February 11, 2009
Have a Plan.
Well "chemo class" is over with and he is scheduled for his treatments. His first treatment will be Wednesday the 18th and will be every two weeks for 6 months. He will be receiving Fulfox 6 which is a combination of three drugs. They will start his infusion at the clinic. It will run for approximately three hours and then he will be hooked up to a pump for the next two days. On Friday he will go back to be disconnected. The "chemo class" was mostly education regarding the effects and side effects of these three drugs and ideas for coping with those. We have friends who have been on both ends of the spectrum of side effects from these treatments, so we are well aware of how challenging it can be as well as how functional it can be. Mark still has a great attitude and is prepared to do what it takes to make the best of this. We already have the days marked on several calendars and we are excited to start marking them off, one by one. We even found out how blessed we were once again. There are already some big dates on our calendar of events that we would like to enjoy. We had been wondering how many of our "good times"might be affected by all of this. Almost every one of them fall on the "off" week of his treatments, meaning that he will have the best chance at feeling well for most of them. How lucky is that?!
If everything goes as planned, his last treatment will be on July 22nd.
Also, we have an appointment on Tuesday the 17th with another oncologist in the metroplex, Dr. Weisberg for a second opinion. We were referred to him by Dr. Crim and are looking forward to hearing another perspective and are hoping that every one's plan concurs. In addition, many people have been asking about Mark's heart. He will have another CAT scan next month to follow the aneurysm. We are also supposed to contact Dr. Kourlis again when we are halfway through his chemotherapy treatments. He has had not complications or symptoms related to his heart through all of this . Praise God!
God has definitely provided for us through all of this. He has given us each other, our kids, and all of you every step of the way. We are so blessed!
We love you all, Missy
Saturday, February 7, 2009
Saturday
Thought you might like to see what the kids are up to lately. Besides basketball and piano and tumbling and school, they are getting into some fundraising for the American Cancer Society. I am forwarding an e-mail that my mother sent so that all of you will have an opportunity to get in on the fun! This is something we have never done before and are kind of ignorant of the whole thing, but we are making an effort to help out.
The Archer County Relay For Life cancer fund raiser is scheduled for April 3, 2009. It will be held at the Archer City High School track starting at 6:00p.m. and concluding at 6:00a.m. the next morning. A number of teams will participate and usually dedicate their walk to a family member or friend who has or is fighting cancer.
I have agreed to be a team captain for the Relay. Cancer has caused some major heartache in my life so walking for a cure is an easy choice for me. Years ago I lost a dear brother, Louis Morath to cancer. This past May, after a long, long battle, my only sister, Jane Berardi died from the complications of cancer and now our son-in-law, Mark Brown is in the process of WINNING his battle with cancer. This year we are dedicating our walk to Jane's memory and in honor of Mark and are calling our team "The JAM (Jane and Mark) Crew". Abby Brown has been asked to be an angel in the opening ceremonies and she and her brothers, Austin and Landon are planning ways to raise money for the event. Abby is selling "Hugs" so have your dollars ready if you meet her somewhere!! The three of them will be our #1 team members!
Our team should consist of 15 walkers who hope to raise $100. each for the event. SO, any of you in the area or who might be in the area on April 3rd, consider this your personal invitation to join us. The first ones to respond saying they want to spend a fun night with us will be the lucky winners! If you can't be here but would still like to help the cause we would be happy to accept your checks made to the American Cancer Society and mailed to me at 4700 Willow Bend Drive, Wichita Falls, TX 76310. We will be turning in our packets before long and hope you will think this is a worthy cause. Remember no amount is too small and the large amounts are welcome also.
I'm hearing there are a number of teams from the Scotland and Windthorst area so we plan to have a fun time, pitch a tent (with cots, please), and do our part for very important people in our lives. Those of you who follow the Brown's blog will probably get much this same message from Melissa. This is definitely a team effort!
We hope to hear from you soon!
Thanks,Nancy Berend
Mark is making it after his procedure yesterday. His port was placed on his left chest, so he has been favoring that quite a bit. He is recovering well from his surgery and is even able to work. He is getting more energy back everyday. Everyone might notice how much weight he has lost. Right now, he is probably at a very healthy weight and we hope he can maintain that. He has held for several days, so we are encouraged by that. I know he is looking good, but I sure wouldn't recommend the weight loss program. I would highly encourage everyone to stick with the weight watchers!
We are still working on getting his chemo lined up. We are supposed to attend chemo school on Tuesday morning and sometime this week we have plans to go back to Baylor to an oncologist for a second opinion. We are anxious to hear another perspective and reinforce confidence in our present plan. As far as when we start, we were told it would be within the next week or two, but no date was set and we are uncertain how that will follow through. We will find out more this week.
Thanks to everyone for your help this week and weekend with getting to all of the appointments and ballgames. We were spread pretty thin with four ballgames in four different towns, but we are so lucky to have such good friends and family to help us out.
Love to all, Missy