Woo Hooooooo! It's Friday! We are so excited to be finished with week 1. Well, I seem to be a little more excited than Mark, but still one week down. One week closer to getting it all over with. Hey, you have to count even the baby steps.
I am sure some people are thinking they are having withdrawals from no posts for a couple of days. Please know that if I don't post, it is because I am entirely too tired (probably fell asleep on the couch) or have absolutely nothing to say (you might have guessed that the latter is probably not the case.) Otherwise I'll do my best to keep you up.
The good news is Mark has had two restful nights. Yeeeaaahhhh! The discomfort he was having seems to be easing also which allows for better rest for him. All in all, we can't complain. We seem to be off to a good start. We are so blessed. Many prayers are working!
The bad news is -- Oh, I Don't have any bad news Yeeaaaahhhhhh!
Blessings to Laurie V, I hear her surgery went well as expected.
Many , Many blessing to all of the Cypert family, (Marks mothers side of his family). Difficult news and challenges seem to be abundant right now. It all seems a little overwhelming, but I know that God is keeping a watchful eye on all of this 'mess'. With the strength and faith of your family, you are surely in good hands.
Happy and safe trick or treating to everyone. I am happy to say we got that out of the way on Wednesday. Small towns are great. You want to change a little holiday festivity (so it doesn't interfere with a football game!!?), and all you have to do is shout it out, put it in the local paper, and on the billboard and it's done. I love this place!
Friday, October 31, 2008
Tuesday, October 28, 2008
10-28-2008
Just a quick note.
Today was day 2. It seems Tuesday will be see the doctor day. Mark will meet with the radiology oncologist on Tuesdays to review how he is doing each week. He feels like it will might take 2 to 3 weeks before he really starts seeing side effects from the radiation. Right now he is just really tired. Keep praying for good rest.
He has met up with couple of our friends when he has gone for treatments. Cancer is just a big bad thing, but God is bigger and he is on our side. For all you Windthorst folks, "we believe" has taken on a whole new meaning for me!
Don't forget to keep Laurie in your prayers for her upcoming surgery. We want only the best news for her this week.
Take care, we love you. Mark, Missy, Austin, Landon and Abby.
Today was day 2. It seems Tuesday will be see the doctor day. Mark will meet with the radiology oncologist on Tuesdays to review how he is doing each week. He feels like it will might take 2 to 3 weeks before he really starts seeing side effects from the radiation. Right now he is just really tired. Keep praying for good rest.
He has met up with couple of our friends when he has gone for treatments. Cancer is just a big bad thing, but God is bigger and he is on our side. For all you Windthorst folks, "we believe" has taken on a whole new meaning for me!
Don't forget to keep Laurie in your prayers for her upcoming surgery. We want only the best news for her this week.
Take care, we love you. Mark, Missy, Austin, Landon and Abby.
Monday, October 27, 2008
October 27, 2008 pm
Oh happy day! We have finally, officially and for really started fighting this thing! That is so exciting to us. We were so ready to at least get started on something. The machine was fixed and he went this afternoon. So today is day one of five weeks of chemo and radiation. Mark is in the bed already. He is dragging a little today, saying he feels a little achy all over and tired, but in general is feeling well. Pray for a good nights sleep.
Oh, I almost forgot, we heard from Dr. Cooley today! He responded by e-mail. He thanked us for requesting his recommendation and asked that we keep him up to date with the progress of his cancer treatment. After reviewing Mark's records, he agrees that the cancer poses the "most immediate threat to his life." He also mentioned that his aorta may have been somewhat dilated all along as a result of his original aortic stenosis and valve replacements. At any rate, the plan will remain the same then, to continue cancer treatment as long as there are no changes with his heart. Which brings us to another prayer. I say lets not just pray for no growth of the aneurysm, but why not go for shrinking a little? Anything is possible and maybe the blood pressure medicine will help. That's a long time away though. We will just keep working day by day.
Oh my, I must go. Instead of sleeping, Abby has been wiggling away at a loose tooth. She is now missing three of her front teeth and is working on #4. Family pictures this weekend. This should be one to remember. She is breaking the tooth fairy$$$$$!!!!
Love to all, Missy
Oh, I almost forgot, we heard from Dr. Cooley today! He responded by e-mail. He thanked us for requesting his recommendation and asked that we keep him up to date with the progress of his cancer treatment. After reviewing Mark's records, he agrees that the cancer poses the "most immediate threat to his life." He also mentioned that his aorta may have been somewhat dilated all along as a result of his original aortic stenosis and valve replacements. At any rate, the plan will remain the same then, to continue cancer treatment as long as there are no changes with his heart. Which brings us to another prayer. I say lets not just pray for no growth of the aneurysm, but why not go for shrinking a little? Anything is possible and maybe the blood pressure medicine will help. That's a long time away though. We will just keep working day by day.
Oh my, I must go. Instead of sleeping, Abby has been wiggling away at a loose tooth. She is now missing three of her front teeth and is working on #4. Family pictures this weekend. This should be one to remember. She is breaking the tooth fairy$$$$$!!!!
Love to all, Missy
October 27, 2008
To all anxiously waiting,
Well, it didn't happen - again. The machine was broken when Mark arrived for radiation. No reschedule yet. They are waiting on a technician to assess the problem. If they can fix, they might call him to come this afternoon. Don't anyone hold your breath! We'll let you know more when something happens.
God knows my only true weakness is patience when it comes to paying money for services. (okay, maybe there are others too.) At any rate, I will learn patience through all of this. Mark is so much more patient than I and he is just waiting for the next call. keep your fingers crossed!
Love to all, Missy
Well, it didn't happen - again. The machine was broken when Mark arrived for radiation. No reschedule yet. They are waiting on a technician to assess the problem. If they can fix, they might call him to come this afternoon. Don't anyone hold your breath! We'll let you know more when something happens.
God knows my only true weakness is patience when it comes to paying money for services. (okay, maybe there are others too.) At any rate, I will learn patience through all of this. Mark is so much more patient than I and he is just waiting for the next call. keep your fingers crossed!
Love to all, Missy
Sunday, October 26, 2008
Couldn't Wait
Hello all,
Awesome, Awesome, Awesome. I wish I could have taken all of you with us.
I know I said I would update on Monday, but I just couldn't wait to let everyone know about our outing last night. Somehow Mark's brother and sisters were able to get us tickets to a sold out Mercy Me concert in Wichita Falls. I don't know why we thought we wanted to go, but about a week ago we learned of the concert and thought we would like it. We let it go, knowing we would need the money in many other places. We must have let it slip that we would like to go and someone went to work. By the end of the week we had two tickets to the concert and a whole bag full of gifts from KMOC, a local radio station. One day we will know the rest of the story!
I don't think either one of us really had any expectations for the concert. Really, both of us thought that we wanted to go hear them sing "I Can Only Imagine" and everything else would just be a new experience for us. I listen to the two Christian music stations, but as with all singers, actors, etc.. I am definitely not on my game. When we arrived 45 min early and the line was wound around the parking lot, my thought was "They must be pretty good if all these people would stand in line to see them."
Bevo Norman opened for Mercy Me. He was very good and also a very good speaker, but no indication of what was to come. When the band came out and lights came up, the setting was somewhat similiar to a rock concert. The same energy, and excitement, and yet, it wasn't just about the music. Sure, the music was good, great performances, and an uplifting spirit in the church, but the whole event had meaning and purpose. They prayed, they worshipped, and they were all there for one reason, because there is a greater God that inspires all of these people who want to be like him.
Mark and I both felt as if these people were speaking to us. They told our story and they confirmed our faith. Something really big is going to happen through all of this. We are going to see God work in a big way. He wants us to glorify him. In our time of need he will come down and save the day and we will give him the glory for all of it. That is what he wants, for us to glorify him.
We are very grateful to you guys for making it possible for us to go. We definitely need the renewal and pick me up every now and then. Thanks to Tessa also for keeping the kids this weekend, they had a great time with their cousins.
Love to all, Missy
Awesome, Awesome, Awesome. I wish I could have taken all of you with us.
I know I said I would update on Monday, but I just couldn't wait to let everyone know about our outing last night. Somehow Mark's brother and sisters were able to get us tickets to a sold out Mercy Me concert in Wichita Falls. I don't know why we thought we wanted to go, but about a week ago we learned of the concert and thought we would like it. We let it go, knowing we would need the money in many other places. We must have let it slip that we would like to go and someone went to work. By the end of the week we had two tickets to the concert and a whole bag full of gifts from KMOC, a local radio station. One day we will know the rest of the story!
I don't think either one of us really had any expectations for the concert. Really, both of us thought that we wanted to go hear them sing "I Can Only Imagine" and everything else would just be a new experience for us. I listen to the two Christian music stations, but as with all singers, actors, etc.. I am definitely not on my game. When we arrived 45 min early and the line was wound around the parking lot, my thought was "They must be pretty good if all these people would stand in line to see them."
Bevo Norman opened for Mercy Me. He was very good and also a very good speaker, but no indication of what was to come. When the band came out and lights came up, the setting was somewhat similiar to a rock concert. The same energy, and excitement, and yet, it wasn't just about the music. Sure, the music was good, great performances, and an uplifting spirit in the church, but the whole event had meaning and purpose. They prayed, they worshipped, and they were all there for one reason, because there is a greater God that inspires all of these people who want to be like him.
Mark and I both felt as if these people were speaking to us. They told our story and they confirmed our faith. Something really big is going to happen through all of this. We are going to see God work in a big way. He wants us to glorify him. In our time of need he will come down and save the day and we will give him the glory for all of it. That is what he wants, for us to glorify him.
We are very grateful to you guys for making it possible for us to go. We definitely need the renewal and pick me up every now and then. Thanks to Tessa also for keeping the kids this weekend, they had a great time with their cousins.
Love to all, Missy
Saturday, October 25, 2008
October 25, 2008
Hello all,
Friday was a great day. Both Mark and I rested well on Thursday and he is feeling much better. Praise God! We even made the trip to Munday to watch the football game!
Mark returned to the cancer treatment center yesterday for his simulation and it appears that everything is set to go for Monday. We won't put any money on it, but that is the plan. We spoke with Dr. Crim via the telephone. Nothing new, just a review of the plan to make sure we are all on the same page with all of the physicians. No news from Dr. Cooley in Houston yet.
Everyone have a great weekend. More updates on Monday. God bless all of you. Missy.
Friday was a great day. Both Mark and I rested well on Thursday and he is feeling much better. Praise God! We even made the trip to Munday to watch the football game!
Mark returned to the cancer treatment center yesterday for his simulation and it appears that everything is set to go for Monday. We won't put any money on it, but that is the plan. We spoke with Dr. Crim via the telephone. Nothing new, just a review of the plan to make sure we are all on the same page with all of the physicians. No news from Dr. Cooley in Houston yet.
Everyone have a great weekend. More updates on Monday. God bless all of you. Missy.
Thursday, October 23, 2008
Nothing happened today!
Good evening to everyone, or maybe it is late night,
At any rate, I know everyone is anxious to find about about the last couple of days and especially today. Through the grapevine you might have heard that absolutely nothing happened today!!!!! Just another case of not having all of the information. We thought we were scheduled for radiation today. Soooo, Mark started his chemotherapy this morning by mouth, as instructed, and went to the cancer treatment center this afternoon for radiation. What we didn't know was that today was simply a history taking, consent signing, picture taking,information giving, tattooing day. Not only that, but tomorrow is more of the same. They will do a simulation of the radiation with all of the settings they created from today's visit. And finally, Monday is supposed to start the real thing. AAAAAAAGGGGGHHHHHHHHHH!!!!
Okay, now that I have that out, we did learn a few things about his radiation today. The lengthy wait following this five week treatment plan is to allow time for the body to heal, swelling, pain, etc. Also, the tissue death from radiation does not all occur at the time of radiation. It happens over a period of several weeks following radiation. So waiting the six weeks allows him to get the full benefit of the radiation. The radiation oncologist was a nice and seemingly knowledgeable man who was able to answer all of our questions and provide beneficial information. It also helps to see familiar faces when you go to new places and Mark Knew several of the people in that center. The down side of the visit, other than being seemingly unproductive, was learning that ulcerative colitis patients tend to have a more difficult time with radiation. They already have an inflammatory bowel process, and the added radiation creates increased side effects and greater risks. The whole experience was not bad, it was just disappointing to think we were finally starting to get a hold on this, only to find out there was more waiting.
I think my positive news will have to come from yesterday. (I can do that since I did not post yesterday). Previously I mentioned that the cardiovascular surgeon recommended we get a second opinion due to the complexity and uniqueness of Marks situation. I contacted Texas Heart Institute in Houston and was able to make a contact at Dr. Denton Cooley's office. This is the physician that performed Marks previous two open heart surgeries. The lady who help me was wonderful. She was going to pull Mark's record's (from the archives and remove the dust, of course) and keep them to put with information she requested to be fed ex'd. We sent results ad films from exams, and a letter explaining our request. She said that he would review all of Mark's information and get back with us. I was just a little excited, so I got it all together yesterday and sent it to be there by noon today. I will let you know if and when I get a response.
We are supposed to visit with Dr. Crim, the colorectal surgeon tomorrow by telephone to follow up on a few things from our last visit. He is supposed to have some feedback for us as well. I will update any new news.
I thank you all so much for your continued support. We are definitely beginning to experience that emotional roller coaster, and I am talking shock wave style, up, and down, and in complete circles. Our life is crazily overwhelming and exhausting right now and we know that it will not end soon. This is why we are so appreciative of everyone. You do not know how uplifting it is to hear from so many of you. Many who we hardly ever get to see. We love you all and are leaning on you and your prayers tremendously.
Special prayers for Mark and the kids today, the last couple of days have been challenging.
Love to all, Missy
At any rate, I know everyone is anxious to find about about the last couple of days and especially today. Through the grapevine you might have heard that absolutely nothing happened today!!!!! Just another case of not having all of the information. We thought we were scheduled for radiation today. Soooo, Mark started his chemotherapy this morning by mouth, as instructed, and went to the cancer treatment center this afternoon for radiation. What we didn't know was that today was simply a history taking, consent signing, picture taking,information giving, tattooing day. Not only that, but tomorrow is more of the same. They will do a simulation of the radiation with all of the settings they created from today's visit. And finally, Monday is supposed to start the real thing. AAAAAAAGGGGGHHHHHHHHHH!!!!
Okay, now that I have that out, we did learn a few things about his radiation today. The lengthy wait following this five week treatment plan is to allow time for the body to heal, swelling, pain, etc. Also, the tissue death from radiation does not all occur at the time of radiation. It happens over a period of several weeks following radiation. So waiting the six weeks allows him to get the full benefit of the radiation. The radiation oncologist was a nice and seemingly knowledgeable man who was able to answer all of our questions and provide beneficial information. It also helps to see familiar faces when you go to new places and Mark Knew several of the people in that center. The down side of the visit, other than being seemingly unproductive, was learning that ulcerative colitis patients tend to have a more difficult time with radiation. They already have an inflammatory bowel process, and the added radiation creates increased side effects and greater risks. The whole experience was not bad, it was just disappointing to think we were finally starting to get a hold on this, only to find out there was more waiting.
I think my positive news will have to come from yesterday. (I can do that since I did not post yesterday). Previously I mentioned that the cardiovascular surgeon recommended we get a second opinion due to the complexity and uniqueness of Marks situation. I contacted Texas Heart Institute in Houston and was able to make a contact at Dr. Denton Cooley's office. This is the physician that performed Marks previous two open heart surgeries. The lady who help me was wonderful. She was going to pull Mark's record's (from the archives and remove the dust, of course) and keep them to put with information she requested to be fed ex'd. We sent results ad films from exams, and a letter explaining our request. She said that he would review all of Mark's information and get back with us. I was just a little excited, so I got it all together yesterday and sent it to be there by noon today. I will let you know if and when I get a response.
We are supposed to visit with Dr. Crim, the colorectal surgeon tomorrow by telephone to follow up on a few things from our last visit. He is supposed to have some feedback for us as well. I will update any new news.
I thank you all so much for your continued support. We are definitely beginning to experience that emotional roller coaster, and I am talking shock wave style, up, and down, and in complete circles. Our life is crazily overwhelming and exhausting right now and we know that it will not end soon. This is why we are so appreciative of everyone. You do not know how uplifting it is to hear from so many of you. Many who we hardly ever get to see. We love you all and are leaning on you and your prayers tremendously.
Special prayers for Mark and the kids today, the last couple of days have been challenging.
Love to all, Missy
Wednesday, October 22, 2008
Good Morning
Good Morning to everyone.
I think I can actually see the computer screen this morning. My fingers will just have to wake up a little!
Yesterdays positive - We met another physician that we have a lot of confidence. That is really important to us. He was very concerned with doing what is best for Mark. The long and short of all this is that Mark is in need of a major heart surgery in addition to his needs for the cancer. Unfortunately, this is not something that physicians are faced with just a whole lot and certainly is not something that is prevalent enough to research. You might guess that that means, there are no definite decisions in place about what the right or best decision is for Mark's plan of care.
If we only had our crystal balls, we would look in there for some guidance. If we only knew which "problem" to take care of first. Heck, if they only knew for certain which medical risk was more pressing. So the steps to making a decision include weighing the risks, rolling the dice, playing the cards, and all those other things you do when you take chances.
Well. That's great if you are a gambler. Some of you know, I am not. Mark and I both are very much convinced that there is only one option. We take everything we have, our heart and soul, and lay it on the table for the dealer. God is going to have to give these physicians the inspiration. They cannot work miracles alone. We cannot expect them to give us answers to all of our questions. They just don't have them. When I suggest that they didn't say what we wanted to hear, it's because, in this case, they don't have the "authority" to do that. Only God does. And he is expecting us to take that leap of faith.
Sooooo, What next? Dr. Kourlis spent a great deal of time laying out every potential scenario for us. He discussed every possibility and answered every question we had. He defined every risk and then it was if he turned on his risk calculator in his head and gave us the "this is what I think you should do."
1. Proceed with Chemo and radiation as scheduled.
2. Have the colon surgery following a rest period after chemo and radiation.
3. Follow the colon surgery with 6 months of chemotherapy, and then do the heart surgery.
4. Have regular CT scans to monitor the status of the heart.
Everything is subject to change at any point. Of course, an emergency situation with his heart would put a hold on everything else. Also, the CT's will be used to monitor changes in his heart. If there are changes, The plan will again change. And lastly, Dr Kourlis highly recommended we speak to another physician regarding Mark's plan of care. He repeatedly encouraged us to see another surgeon, possibly Dr. Cooley that place Marks artificial heart valve many years ago. He was very interested for us to let him know if we received any different perspectives to consider.
Keep the prayers coming. It's the only way. I know he hears and is supporting us through all of you.
Love to all, Missy
I think I can actually see the computer screen this morning. My fingers will just have to wake up a little!
Yesterdays positive - We met another physician that we have a lot of confidence. That is really important to us. He was very concerned with doing what is best for Mark. The long and short of all this is that Mark is in need of a major heart surgery in addition to his needs for the cancer. Unfortunately, this is not something that physicians are faced with just a whole lot and certainly is not something that is prevalent enough to research. You might guess that that means, there are no definite decisions in place about what the right or best decision is for Mark's plan of care.
If we only had our crystal balls, we would look in there for some guidance. If we only knew which "problem" to take care of first. Heck, if they only knew for certain which medical risk was more pressing. So the steps to making a decision include weighing the risks, rolling the dice, playing the cards, and all those other things you do when you take chances.
Well. That's great if you are a gambler. Some of you know, I am not. Mark and I both are very much convinced that there is only one option. We take everything we have, our heart and soul, and lay it on the table for the dealer. God is going to have to give these physicians the inspiration. They cannot work miracles alone. We cannot expect them to give us answers to all of our questions. They just don't have them. When I suggest that they didn't say what we wanted to hear, it's because, in this case, they don't have the "authority" to do that. Only God does. And he is expecting us to take that leap of faith.
Sooooo, What next? Dr. Kourlis spent a great deal of time laying out every potential scenario for us. He discussed every possibility and answered every question we had. He defined every risk and then it was if he turned on his risk calculator in his head and gave us the "this is what I think you should do."
1. Proceed with Chemo and radiation as scheduled.
2. Have the colon surgery following a rest period after chemo and radiation.
3. Follow the colon surgery with 6 months of chemotherapy, and then do the heart surgery.
4. Have regular CT scans to monitor the status of the heart.
Everything is subject to change at any point. Of course, an emergency situation with his heart would put a hold on everything else. Also, the CT's will be used to monitor changes in his heart. If there are changes, The plan will again change. And lastly, Dr Kourlis highly recommended we speak to another physician regarding Mark's plan of care. He repeatedly encouraged us to see another surgeon, possibly Dr. Cooley that place Marks artificial heart valve many years ago. He was very interested for us to let him know if we received any different perspectives to consider.
Keep the prayers coming. It's the only way. I know he hears and is supporting us through all of you.
Love to all, Missy
Tuesday, October 21, 2008
Sorry
I am just too tired and falling asleep at this computer. I will be up first thing and post in am. Thanks for all your acts of kindness. Love to all, Missy
Tuesday October 21, 2008
Tuesday 10-21-08 Great cardiac surgeon but looks like the plan stays the same for now. Will attempt to seek more advice since the heart and the colon together are more complicated. Mark will start Chemo- therapy and radiation on Thursday in WF for 5 weeks. Keep us in your prayers as our plans unfold.
Monday, October 20, 2008
Good Visit Today
Sorry so late,
I finally have a minute to breathe. We are running, running every day. So many people to thank today. Our extended family at eigth street and at eleventh street at the hospital blew us away today with their acts of kindness. Many thanks to all of you for your gifts to make our days a little easier to get through. You all mean the world to us. And to everyone who is take care of us during these stressful times.
Now what you have all been waiting for. The visit with Dr. Crim went well today. Each day so far seemed to bring such gloom. Today, nothing much has changed medically, but we met up with someone who gives such a positive outlook. He is very comfortable with his decision for Mark's plan - like he does this every day! Exactly the reason we were sent here. He says that he is aggressive and it is his job to fix things. He feels Marks cancer is very treatable and he believes he is working to cure Mark. Yea!!
He is very honest about the difficult road ahead. He agrees with the plan as it is and says that it is standard to treat for 5 weeks with Chemotherapy and Radiation prior to surgery. He will do surgery approx 6 weeks following the treatments. He also confirmed that Mark would have another 6 months of Chemo following surgery. The surgery, specifically the reconstruction is apparently a very complex one and he gave us much "light reading" to learn more about it. He did make the newest reconstruction options available to us which seem to have come a long way over the last ten years. Mark was very pleased with this.
Tomorrow, we are seeing Mark's Cardiologist in Wichita Falls, and a Cardiovascular surgeon in Dallas to discuss options for the repair of Marks heart. I haven't been real specific about the concerns of his heart, but hope to fill you in with greater detail tomorrow after we have some more answers.
Mark was very happy today and really liked Dr. Crim. It was really good to see him be so comfortable with someone we just met. He really liked his positive outlook.
Time to go rest before we start all over tomorrow. Thank you for all your prayers. They are definitely being heard.
I finally have a minute to breathe. We are running, running every day. So many people to thank today. Our extended family at eigth street and at eleventh street at the hospital blew us away today with their acts of kindness. Many thanks to all of you for your gifts to make our days a little easier to get through. You all mean the world to us. And to everyone who is take care of us during these stressful times.
Now what you have all been waiting for. The visit with Dr. Crim went well today. Each day so far seemed to bring such gloom. Today, nothing much has changed medically, but we met up with someone who gives such a positive outlook. He is very comfortable with his decision for Mark's plan - like he does this every day! Exactly the reason we were sent here. He says that he is aggressive and it is his job to fix things. He feels Marks cancer is very treatable and he believes he is working to cure Mark. Yea!!
He is very honest about the difficult road ahead. He agrees with the plan as it is and says that it is standard to treat for 5 weeks with Chemotherapy and Radiation prior to surgery. He will do surgery approx 6 weeks following the treatments. He also confirmed that Mark would have another 6 months of Chemo following surgery. The surgery, specifically the reconstruction is apparently a very complex one and he gave us much "light reading" to learn more about it. He did make the newest reconstruction options available to us which seem to have come a long way over the last ten years. Mark was very pleased with this.
Tomorrow, we are seeing Mark's Cardiologist in Wichita Falls, and a Cardiovascular surgeon in Dallas to discuss options for the repair of Marks heart. I haven't been real specific about the concerns of his heart, but hope to fill you in with greater detail tomorrow after we have some more answers.
Mark was very happy today and really liked Dr. Crim. It was really good to see him be so comfortable with someone we just met. He really liked his positive outlook.
Time to go rest before we start all over tomorrow. Thank you for all your prayers. They are definitely being heard.
Monday , 10-20-08
Missy reported the appointment with the colorecto - Surgeon, in Dallas went well. The visit was very positive with the surgeon agreeing with the radiation plans over the next 5-6 weeks. Both Missy and Mark liked the surgeon and his approach to Mark's recovery. There is no surgery date determined at this time. After tommorrows visit with the cardiac surgeon they will have more information to make the plans for the course of Mark's treatment. More information will follow after tommorrows appointments with the cardiac surgeon. Thanks for the prayers, thoughts and calls.
Sunday, October 19, 2008
October 19, 2008
Hello all,
I thought everyone could use a big smile and this makes me smile.
No new news today. We all know nothing happens on the weekends in the medical world. That's okay, because that gives us time of to focus on our prayers. Speaking of, I know that all of us have so many prayers to send, but if we could make room to add a few more to the list, we know of a couple. In this small community we live in, we seem to have been plagued recently with bad news. We are overwhelmed with cancer! We have several friends who also have been diagnosed recently with cancer of various forms. We know that they and their families are in need of the same support that we are as we all have a long road ahead of us. I have no doubt that one day we will all be looking back on this time able to see how far we have come, but until then, please help us pray for them too. Pauline, Laurie, Pam, God is on our side. We must stay focused on him and gain strength through Him each step of the way.
Tomorrow is a very big day. Mark says he is so ready to "just get this show on the road." The waiting and unknowns are difficult, but all on His schedule. We will update probably tomorrow evening when we return. Thanks to our parents for covering the kids over the next few days.
I wanted to throw in a little extra something. Forward e-mails are not typically my cup of tea, but every now and then I get one I just can't let go of. I thought you all would appreciate. Thanks Cindy!
FAKE FRIENDS/REAL FRIENDS
FAKE FRIENDS: Never ask for food.
REAL FRIENDS: Are the reason you have no food.
FAKE FRIENDS: Call your parents Mr / Mrs
REAL FRIENDS: Call your parents DAD/MOM
FAKE FRIENDS: Never seen you cry
REAL FRIENDS: Cry with you
FAKE FRIENDS: Borrow your stuff for a few days then give it back
REAL FRIENDS: Keep your stuff so long they forget it's yours
FAKE FRIENDS: Know a few things about you
REAL FRIENDS: Could write a book about you with direct quotes from you
FAKE FRIENDS: Will leave you behind if that is what the crowd is doing
REAL FRIENDS: Will kick the whole crowds butt that left you
FAKE FRIENDS: Would knock on your front door
REAL FRIENDS: Walk right in and say 'I'M HOME!'
FAKE FRIENDS: Are for awhile
REAL FRIENDS: Are for life
FAKE FRIENDS: Will talk bad to the person who talks bad about you.
REAL FRIENDS: Will knock the person out that talked bad about you
Love you all, Mark and Missy
I thought everyone could use a big smile and this makes me smile.
No new news today. We all know nothing happens on the weekends in the medical world. That's okay, because that gives us time of to focus on our prayers. Speaking of, I know that all of us have so many prayers to send, but if we could make room to add a few more to the list, we know of a couple. In this small community we live in, we seem to have been plagued recently with bad news. We are overwhelmed with cancer! We have several friends who also have been diagnosed recently with cancer of various forms. We know that they and their families are in need of the same support that we are as we all have a long road ahead of us. I have no doubt that one day we will all be looking back on this time able to see how far we have come, but until then, please help us pray for them too. Pauline, Laurie, Pam, God is on our side. We must stay focused on him and gain strength through Him each step of the way.
Tomorrow is a very big day. Mark says he is so ready to "just get this show on the road." The waiting and unknowns are difficult, but all on His schedule. We will update probably tomorrow evening when we return. Thanks to our parents for covering the kids over the next few days.
I wanted to throw in a little extra something. Forward e-mails are not typically my cup of tea, but every now and then I get one I just can't let go of. I thought you all would appreciate. Thanks Cindy!
FAKE FRIENDS/REAL FRIENDS
FAKE FRIENDS: Never ask for food.
REAL FRIENDS: Are the reason you have no food.
FAKE FRIENDS: Call your parents Mr / Mrs
REAL FRIENDS: Call your parents DAD/MOM
FAKE FRIENDS: Never seen you cry
REAL FRIENDS: Cry with you
FAKE FRIENDS: Borrow your stuff for a few days then give it back
REAL FRIENDS: Keep your stuff so long they forget it's yours
FAKE FRIENDS: Know a few things about you
REAL FRIENDS: Could write a book about you with direct quotes from you
FAKE FRIENDS: Will leave you behind if that is what the crowd is doing
REAL FRIENDS: Will kick the whole crowds butt that left you
FAKE FRIENDS: Would knock on your front door
REAL FRIENDS: Walk right in and say 'I'M HOME!'
FAKE FRIENDS: Are for awhile
REAL FRIENDS: Are for life
FAKE FRIENDS: Will talk bad to the person who talks bad about you.
REAL FRIENDS: Will knock the person out that talked bad about you
Love you all, Mark and Missy
Saturday, October 18, 2008
Changes to Blog
We just wanted to let everyone know that we changed some of the settings on the website. We did not realize the hassle many people were experiencing when trying to leave post. I think it should be corrected. You should no longer have to create a profile or register(or whatever lengthy process was involved) to leave a comment. If it is still a problem, you are welcome to use our home e-mail mmbrown@nts-online.net. Thanks to everyone for all of your kind words. Mark and Missy.
Friday, October 17, 2008
October 17, 2008
Hello all,
We received some news today. Many of you probably remember many years ago when Mark had an artificial valve replacement to correct a heart condition that he was born with. Since that time, he has had routine visits to follow the status of his heart. As part of the preparation for his surgery, they have been doing testing to further evaluate his heart. Some concerns have arisen that pose increased risks. His cardiologist will see him again on Tuesday and we will go to Dallas to see a cardiac specialist on Tuesday as well. Please keep praying that God gives all of these doctors a clear plan to treat Mark with the best care possible.
While today was a difficult one, we keep striving to recognize something positive in each day. If it weren't for Mark's cancer diagnosis, they would not have discovered these new findings at this time. All of these pieces are going to come together one day - on God's schedule!
Love to all, Missy
We received some news today. Many of you probably remember many years ago when Mark had an artificial valve replacement to correct a heart condition that he was born with. Since that time, he has had routine visits to follow the status of his heart. As part of the preparation for his surgery, they have been doing testing to further evaluate his heart. Some concerns have arisen that pose increased risks. His cardiologist will see him again on Tuesday and we will go to Dallas to see a cardiac specialist on Tuesday as well. Please keep praying that God gives all of these doctors a clear plan to treat Mark with the best care possible.
While today was a difficult one, we keep striving to recognize something positive in each day. If it weren't for Mark's cancer diagnosis, they would not have discovered these new findings at this time. All of these pieces are going to come together one day - on God's schedule!
Love to all, Missy
Thursday, October 16, 2008
CT scan results
Hello all,
So sorry for the wait. I know everyone is on pins and needles. Mark had his CAT scan this morning and we had good news. There are no spots on his liver or in his lungs. Yaaaahhh. The tumor was visible and it is growing beyond the wall of the rectum. It does appear that there may be some pelvic lymph node involvement as well. So, good and not so good, but I will take any kind of good we can get.
You cannot imagine how touched we are by all of your e-mails and calls. I have never experienced anything like the support that we have seen over the last couple of days. Sometimes from people we don't even know! It is really very powerful and inspirational to hear so many kind and caring words. So many of them come from people who have been where we are and now can tell their story. We plan to do the same one of the days.
I just have to make note of one of the most exciting e-mails I got today. My cousin Janine e-mailed to tell us that Dr. Crim, the surgeon Mark will see, is one of her good friends! Is that not incredible. We all know how beneficial it can be to know people in the right places, but this is just awesome. She was going to contact him to let him know she had family coming. What a blessing, and like she said, a small world!
Have to go get busy. Love to all, Missy
So sorry for the wait. I know everyone is on pins and needles. Mark had his CAT scan this morning and we had good news. There are no spots on his liver or in his lungs. Yaaaahhh. The tumor was visible and it is growing beyond the wall of the rectum. It does appear that there may be some pelvic lymph node involvement as well. So, good and not so good, but I will take any kind of good we can get.
You cannot imagine how touched we are by all of your e-mails and calls. I have never experienced anything like the support that we have seen over the last couple of days. Sometimes from people we don't even know! It is really very powerful and inspirational to hear so many kind and caring words. So many of them come from people who have been where we are and now can tell their story. We plan to do the same one of the days.
I just have to make note of one of the most exciting e-mails I got today. My cousin Janine e-mailed to tell us that Dr. Crim, the surgeon Mark will see, is one of her good friends! Is that not incredible. We all know how beneficial it can be to know people in the right places, but this is just awesome. She was going to contact him to let him know she had family coming. What a blessing, and like she said, a small world!
Have to go get busy. Love to all, Missy
I hope this works.
Hello All,
I am finally going to get this communication thing under control, I hope. We are desperately wanting to keep in touch with all of you and wish that there were enough hours in the day to talk to everyone. Even with the help spreading the word, I fear that we are failing miserably in our efforts to keep everyone updated.
First of all, there are some who still may not know of our recent news. This Monday Mark went for a colonoscopy and was diagnosed with cancer. Mark has had ulcerative colitis for approx. 14 1/2 years. This condition is one of the leading causes of colon cancer. We have known this and for this reason he has had numerous colonoscopies over the years. Both Mark and I anticipated this kind of news would come one day, but had no idea it would be so soon. It has been a whirlwind of emotion and activity since the moment we were told. Initially we had little information and a whole lot of questions. Our visit to the oncologist and the gastrointerologist have cleared up many of our questions. I apologize for the wait. I know everyone is as anxious as we are to get information. I am going to start with some of the most frequently asked questions to try and cover all this.
Q. How big is it?
A. We initially were told that the tumor was "not small." Today we learned that actual dimensions. It is 5cm (2 inches) in length and is half of the circumference of the lumen. Think of it as if you were looking into a cylinder. On the left hand side this tumor extends from 12 o'clock to 6 o'clock and down the cylinder for 2 inches. This is classified as medium size. The depth of the tumor into the wall is uncertain. The doctor's speculation is that it has infiltrated the full thickness of the wall of the rectum. They will know for certain after surgery.
Q. What stage is it?
A. There has been no staging. Typically this is done after surgery when the depth into the wall is determined and the lymph nodes have been tested. There are new techniques for staging prior to surgery by way of endoscopic ultrasound. We will ask the surgeon about this.
Q. Where is it?
A. In the rectum.
Q. Will he have to have surgery?
A. Most definitely. Initially we were told within a week. Then it went to two weeks. Now I think we are looking at six weeks out. Why so long?, See next question.
Q. Will he have to have Radiation or Chemotherapy?
A. This is the reason the surgery will not be immediate. He will receive 5 weeks of chemotherapy and radiation. Then have a recovery period and then have surgery. I have questioned this repeatedly as our first inclination is to want it out. Here is the explanation we have received. 15 to 20 years ago, the treatment for all cancer was to cut it out. Through research and advanced technology, they have learned things that are applicable to rectal cancer. Many rectal cancers are infiltrative and spread rapidly lending to recurrence of cancer in other places in the pelvis, even when the tumor is removed. Treating with chemo and radiation prior to surgery shrinks the tumor, slows lymph node infiltration and reduces recurrence of cancer in the pelvis. In other words the old "just get it out" has been slightly modified for rectal cancer. Chemotherapy used preoperatively has the purpose of making the tumor more sensitive to the radiation thereby making the radiation more effective. The chemotherapy is taken in pill form. It is taken concurrently with the radiation. Radiation is scheduled to start Oct 23rd, or possibly sooner. Radiation is everyday, five days a week for five weeks.
Q. Where will he have to have surgery?
A. He will go to the Dallas area to have surgery. There are no colo-rectal surgeons in Wichita Falls. While we have some very good general surgeons, cancers of the rectum are often referred to a specialist as they can be slightly more complicated. We will be seeing the surgeon on Monday the 20th. His name is Dr. Randall Crim in Irving. The surgery will be at Baylor Medical Center at Irving.
Q. What kind of surgery will he have?
A. Unfortunately, Mark will lose his entire colon. This is not only a result of the tumor, but of the ulcerative colitis as well. The probability of recurrence is too great to take any chances with the rest of the colon, as the ulcerative colitis affects his entire colon. We have repeatedly been told we have no option but to do it this way.
Q. Has it spread anywhere else?
A. In the morning we are going to have a CT scan. (He is loving the prep as I am writing!) We know that the liver and lungs are primary sites of metastasis, and we will anxiously await those results. Please pray, pray, pray. We certainly don't want anymore bad news.
Q. Have you told the kids?
A. We have done so. They are doing as well as anyone. Such inquisitive minds, and definitely good medicine for us. As you might guess. The church hill and school are the center of our grapevine here in these parts. It only takes three kids praying for their dad at school to spread news like wildfire. You definitely don't need billboards around here!. No complaints for that for sure. We are so grateful for this community and our friends, family and support here. We just wouldn't trade it. The only regret is that I am told that news might have spread so fast that it got to family second hand. We are very sorry to all of those we haven't gotten to.
Q. How are ya'll doing this?
A. We have no idea!. God is good!
Q. How is Mark?
A. Mark is Mark. I am having the most trouble answering this one I think. I am not sure either of us really know how we are doing. He is such a wonderful person and so strong, but human too. We can work, work, work and occupy our time, but when that free minute comes, you might actually lose it. He has told me he has those moments too. Like I said, human. He is positive, and very witty, and yet realistic. We both agree that this is not going to get the best of any of us, but it is real and it is in God's hands. He has taken care of Mark before and he will do it again.
Q. What can we do?
A. You are doing it. Your caring and concern is evident by your phone calls, cards, e-mails and your taking the time to read such a lengthy e-mail. Even the independent side of me is well aware of the needs that will arise during this time. No doubt we will have to rely on family and friends for help over the next several months. Everyone can rest assured that I will suck it up and ask for help! (Even those who know I sometimes just say that) Just ask around. It has already started. More importantly, you can pray, pray, pray. We can't get through this without our faith. Bad things can happen to good people, and good people know where to turn when they do. We both know that these tests of faith can drag you down and we are counting on everyone's prayers to lift us up. "There is nothing that I do today that God and I can't handle"
OK, I am about done. I've never been known to be real wordy, but??????? (He, He, He)
This was the best start I have to keeping everyone informed. These are all of the e-mails that I have. Please forward to anyone who we might be leaving out. We do not intend to do so. I have never created a web page, or blog, but I am going to try to work on that. Then when people ask, maybe they can be referred to a link. That way you can access from anywhere, and I can have help with updates from friends and family. Lord knows I am the worst at checking my e-mail. I will work on that soon. Until then I will do my best to update by e-mail. If you have any questions, don't hesitate to drop a note, I will do my best.
One more thing, Since I know there are a lot of prayer lists going around, throw in an extra for Grandma and Grandpa Berend. God has blessed us with such great grandparents and we pray for continued good health.
Love to all, the Brown's
I am finally going to get this communication thing under control, I hope. We are desperately wanting to keep in touch with all of you and wish that there were enough hours in the day to talk to everyone. Even with the help spreading the word, I fear that we are failing miserably in our efforts to keep everyone updated.
First of all, there are some who still may not know of our recent news. This Monday Mark went for a colonoscopy and was diagnosed with cancer. Mark has had ulcerative colitis for approx. 14 1/2 years. This condition is one of the leading causes of colon cancer. We have known this and for this reason he has had numerous colonoscopies over the years. Both Mark and I anticipated this kind of news would come one day, but had no idea it would be so soon. It has been a whirlwind of emotion and activity since the moment we were told. Initially we had little information and a whole lot of questions. Our visit to the oncologist and the gastrointerologist have cleared up many of our questions. I apologize for the wait. I know everyone is as anxious as we are to get information. I am going to start with some of the most frequently asked questions to try and cover all this.
Q. How big is it?
A. We initially were told that the tumor was "not small." Today we learned that actual dimensions. It is 5cm (2 inches) in length and is half of the circumference of the lumen. Think of it as if you were looking into a cylinder. On the left hand side this tumor extends from 12 o'clock to 6 o'clock and down the cylinder for 2 inches. This is classified as medium size. The depth of the tumor into the wall is uncertain. The doctor's speculation is that it has infiltrated the full thickness of the wall of the rectum. They will know for certain after surgery.
Q. What stage is it?
A. There has been no staging. Typically this is done after surgery when the depth into the wall is determined and the lymph nodes have been tested. There are new techniques for staging prior to surgery by way of endoscopic ultrasound. We will ask the surgeon about this.
Q. Where is it?
A. In the rectum.
Q. Will he have to have surgery?
A. Most definitely. Initially we were told within a week. Then it went to two weeks. Now I think we are looking at six weeks out. Why so long?, See next question.
Q. Will he have to have Radiation or Chemotherapy?
A. This is the reason the surgery will not be immediate. He will receive 5 weeks of chemotherapy and radiation. Then have a recovery period and then have surgery. I have questioned this repeatedly as our first inclination is to want it out. Here is the explanation we have received. 15 to 20 years ago, the treatment for all cancer was to cut it out. Through research and advanced technology, they have learned things that are applicable to rectal cancer. Many rectal cancers are infiltrative and spread rapidly lending to recurrence of cancer in other places in the pelvis, even when the tumor is removed. Treating with chemo and radiation prior to surgery shrinks the tumor, slows lymph node infiltration and reduces recurrence of cancer in the pelvis. In other words the old "just get it out" has been slightly modified for rectal cancer. Chemotherapy used preoperatively has the purpose of making the tumor more sensitive to the radiation thereby making the radiation more effective. The chemotherapy is taken in pill form. It is taken concurrently with the radiation. Radiation is scheduled to start Oct 23rd, or possibly sooner. Radiation is everyday, five days a week for five weeks.
Q. Where will he have to have surgery?
A. He will go to the Dallas area to have surgery. There are no colo-rectal surgeons in Wichita Falls. While we have some very good general surgeons, cancers of the rectum are often referred to a specialist as they can be slightly more complicated. We will be seeing the surgeon on Monday the 20th. His name is Dr. Randall Crim in Irving. The surgery will be at Baylor Medical Center at Irving.
Q. What kind of surgery will he have?
A. Unfortunately, Mark will lose his entire colon. This is not only a result of the tumor, but of the ulcerative colitis as well. The probability of recurrence is too great to take any chances with the rest of the colon, as the ulcerative colitis affects his entire colon. We have repeatedly been told we have no option but to do it this way.
Q. Has it spread anywhere else?
A. In the morning we are going to have a CT scan. (He is loving the prep as I am writing!) We know that the liver and lungs are primary sites of metastasis, and we will anxiously await those results. Please pray, pray, pray. We certainly don't want anymore bad news.
Q. Have you told the kids?
A. We have done so. They are doing as well as anyone. Such inquisitive minds, and definitely good medicine for us. As you might guess. The church hill and school are the center of our grapevine here in these parts. It only takes three kids praying for their dad at school to spread news like wildfire. You definitely don't need billboards around here!. No complaints for that for sure. We are so grateful for this community and our friends, family and support here. We just wouldn't trade it. The only regret is that I am told that news might have spread so fast that it got to family second hand. We are very sorry to all of those we haven't gotten to.
Q. How are ya'll doing this?
A. We have no idea!. God is good!
Q. How is Mark?
A. Mark is Mark. I am having the most trouble answering this one I think. I am not sure either of us really know how we are doing. He is such a wonderful person and so strong, but human too. We can work, work, work and occupy our time, but when that free minute comes, you might actually lose it. He has told me he has those moments too. Like I said, human. He is positive, and very witty, and yet realistic. We both agree that this is not going to get the best of any of us, but it is real and it is in God's hands. He has taken care of Mark before and he will do it again.
Q. What can we do?
A. You are doing it. Your caring and concern is evident by your phone calls, cards, e-mails and your taking the time to read such a lengthy e-mail. Even the independent side of me is well aware of the needs that will arise during this time. No doubt we will have to rely on family and friends for help over the next several months. Everyone can rest assured that I will suck it up and ask for help! (Even those who know I sometimes just say that) Just ask around. It has already started. More importantly, you can pray, pray, pray. We can't get through this without our faith. Bad things can happen to good people, and good people know where to turn when they do. We both know that these tests of faith can drag you down and we are counting on everyone's prayers to lift us up. "There is nothing that I do today that God and I can't handle"
OK, I am about done. I've never been known to be real wordy, but??????? (He, He, He)
This was the best start I have to keeping everyone informed. These are all of the e-mails that I have. Please forward to anyone who we might be leaving out. We do not intend to do so. I have never created a web page, or blog, but I am going to try to work on that. Then when people ask, maybe they can be referred to a link. That way you can access from anywhere, and I can have help with updates from friends and family. Lord knows I am the worst at checking my e-mail. I will work on that soon. Until then I will do my best to update by e-mail. If you have any questions, don't hesitate to drop a note, I will do my best.
One more thing, Since I know there are a lot of prayer lists going around, throw in an extra for Grandma and Grandpa Berend. God has blessed us with such great grandparents and we pray for continued good health.
Love to all, the Brown's
I think I got it.
Okay, it may not be very original, but I think I have a start to this blog thing. Hope you all get a good look at "Sheriff Brown" Just a bit of fun from our Fredricksburg trip. I am going to try to copy the most recent e-mail. We'll see.
Subscribe to:
Posts (Atom)
