A better day.

Gosh it is really cool to see you guys talking on here. LOOOVVVE IIITTT!!! Today is a pretty good day. Guess many prayers are working to give us better days. Sometimes even better hours are very welcome. I see I must have struck a note with my last post as it elicited a lot of comments. And all of them much appreciated. It's huge just knowing you are right beside us.

I harp on my children frequently, "If you don't have anything good to say, just don't speak." This would explain the scarceness of my texts. "Good" has been a little limited these days. It comes when we least expect it and we just never know what each day will bring. Sparing all the gory details, I'll try to summarize in a few words. COW POOP!!! Yesirreeeee. That about says it. Mark stays very tired for most of the 2 weeks following his treatment. The last couple of days have been better in that respect. His appetite isn't the greatest, but mostly because he is searching for answers to all of his bowel difficulties. While he is very tired,and sleeps a great deal, he has trouble sleeping at night. He gets his best sleep between 4 and 9 am on the recliner. He has to get up frequently and just has trouble getting comfortable. We have an arsenal of meds to help, but haven't found the magic potion yet. He has a product en route that he says is going to be "it".

Struggling with the side effects can definitely add stress. There is much frustration with just feeling absolutely out of control. While we wish we had all the answers, solutions, magic medicines - we don't. Only one person does. But the fact remains that we are human. We do experience sadness, frustration, anger, pain, hurt and all of the multitude of feelings that come along with being in this situation. Thank God we are NORMAL. And while we are experiencing that, it is not really our desire to make that our focus, nor a topic of the blog. If we were to dwell on that, we would find it hard to keep going each day. You may all rest assured in knowing that we continue to be strong, to be faithful, to be happy and to be BUSY!!!!! So there is no room for anything to get us down for any length of time. Our roller coaster seems infinite at this point, with twists and turns coming day by day and sometimes hour by hour. And it's also like those roller coasters at Disneyworld. You ride IN THE DARK and you don't know what is going to come next. So, if we are quiet, just continue to pray, cuz we are just holding our breath and holding on!!!!

Oh yeah, I forgot to throw in the GOOD. I did say it was scarce - not absent. No mouth sores this time. YEAH!!! And, one night in the last week he slept for 6 hours straight without getting up. WOOHOOOO!!! He sat straight up in bed and I thought something bad had happened. He said, "No, do you see what time it is? I haven't been up in six hours." Aaaahhhhhhh, we are thankful for the little things.
And there is always you, our friends, our family. There is nothing but good in having all of you who care so much to take the time to pray and keep up with our lives. We love you all, Missy